interview with Stephanie wednes 5th novem 014
| Posted on November 5, 2014 at 5:20 PM |
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i would like people to welcome a young lady who has Aspergers.i am very very impressed with her.THIS INTERVIEW WILL BE IN TWO PARTS
Tlk a little about your self .age.your blog details.your work.,JOB.
i am 28 and run a blog at www.spectrumeye.wordpress.com.in which i detail my thoughts on various aspects of aspergers ,i work shifts as a residential support worker.in a home for children with epileasy .autism and profound and multiple learning difficulties.i have been there for under
six years now and love it.
1,what would you like to see change most in the autism/asperger syndrome world
reply,the thing i would like to see change most is i would like this myth that we lack empathy to stop .so many people with aspergers have very high levels of empathy .they just may not be displayed in the typical way .eg,hugs
2.when was you diagnosed with aspergers .age ,has it helped you being diagnosed.how do people treat you like friends.family.work mates,have
you had any bullying if yes what happened .do you have any sisters//brothers
reply.
i was diagnosed with aspergers at the age of eight .i think the diagnosiss has helped me .because it has mde me more aware of my own strenghs and limitations .and it has helped me to develope coping strategies .people generally treat me well.although will some times comment
that they don.t understand me and find this frustrating.i was bullied at school .but.am no longer bullied now.the bullying was mainly verbal.i would get called SPASTIC. a lot and people would ignore me when i walked in a room.i have a older brother .1,younger sister.a four year old half sister .2,step sisters and 3.stepbrothers.
3,do you have hayfever,asthma.migraines.do you find aspergers makes them allergies a lot worsor
reply,
i do have hayfever .which i take certrizane for.i n the hayfever season. i get occasional headaches.but they are not migraines.i do not have asthma.i do not think that aspergers in itsself worsens allergies .but i think our tendency to be irratable when stressed or tired means we cope with them less well.
4.what do you think of sex education for people with autism/aspergers
reply.
i think sex education for people with aspergers//autism is essentialwe exsperience the same feelings.and desires aseveryone else .but can be taken advantage of it is in our best interests to know to stay safe from unwanted pregnanies and diseases.
5.a question for you too ask me...,what do i think of all the research going into what causes autism .do i think science is too obsessed wiyth this,
my reply.
i am a very very big VICTIM of taking part in research ,i am very well REPECTED FOR DOING THIS.if i did not take part in research how can
people understand,how can people held with such a problem as autism/aspergers.for science YES,IT IS VERY MUCH OBSESSED with
this.people with autism/aspergersnhave lot obsessions SO SCIENCE BEING OBSESSED .VERY VERY VERY GOOD FOR US,
mark
shaving,saturday 1 november 014
| Posted on November 1, 2014 at 7:20 PM |
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by this i mean Pubic hairs...,,, having asperger it is very very sensory problem
1.do not shave straight down.
2,do not use shaving cream .will make it very sore
1.razer blade shave from the penis going UP .take it couple of inches up too belly button
2.up then across.BUT NOT STRAIGHT DOWN..do ..not..rush
3.ware belly button is then with the razer go AROUND the button like CIRCLE so hairs are away from belly button
4.there will be itching use E-45 CREAM 2 TIMES A DAY ,shave two to three times a week there.itching will go .but
still use e-45 cream .
5,do not trim, there will be even more ithing ,lot more sores
6.do not shave UNDER //AROUND THE BALLS ,all ways wash.clean your self
7.do not use any powder or soap round that part .ONLY E-45 CREAM
mark
sants closer,saturday 1 novem 014
| Posted on November 1, 2014 at 7:10 PM |
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ooh, yes .had my santa jumper on this week .tabitha brought me a santa t-shirt top.very fantastic.i love christmas
there is nothing else like it on this planet.mullied wine with sacsumas .christmas socks .christmas t-shirt i started
wearing two weeks ago.i try my best too cheer people up
ooh,yes very soon there will be another person young lady i have interviewed
mark
iBS..monday 27th octo 014
| Posted on October 27, 2014 at 6:15 PM |
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more about bowel trouble
i have m.e with this you get irritable bowel syndrome
i have to wear adult nappies
very very often nausea feeling BUT ALL SO BEING SICK
bloating very very often .PEOPLE have said to me .when is the baby due
Diarrhea very painful bleeding .draining ,often very Runny //shitty .
i do not feel ashamed but feel very disgusting PEOPLE make me feel this way
i have had too have Enemas or suppositories
very stressfull..full of anxiety.. panic attacks
so sore down there when cream has been put on .IT LOOKS LIKE IT HAS SNOWED DOWN THERE..,trying to be funny
here,BUT.IT IS NOT
bullying .PEOPLE SEE laugh call very bad names
never being asked out
mark
bladder//bowel problems.sunday26 th octo 014
| Posted on October 26, 2014 at 6:35 PM |
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I have aspergers and M.E .from as far back as i can remember i have had bladder problems then later bowel problems .BOTH VERY COMMON WITH ASPERGERS AND .M.E. ,,,i have too wear Adult Nappies seven days a week.i am wet heavy five times a day. soiling 2 times a day .heavy,
in the past i have taken part in research for bladder///bowel problems.I HAVE THESE RESULTS.,some of the nappies i was given too test was a rip off//con .they would not hold a babies urine or shit .let alone Adults .i do NOT feel ashamed of these problems .WHY SHOULD I.but .BUT i do
feel very very Disgusting seven days a week.it is PEOPLE who make me feel like Dirty .i have in the past had a catheter in for one year and six months .was fatastic,amazing.UNTIL CATHETER BROKE OFF INSIDE ME.most days week i get very bad sores front and back,.,i am never asked
out any ware,I TAUGHT MYSELF TOO SWIM.yes,people do see the accidents i have .laugh call very bad name .WHAT WOULD THEY DO IN MY SHOES .HOW WOULD THEY COPE.,
i am the kind person too talk about things most would NOT.hoping it helps people be more aware /understand.so People get used too it
mark
M.E.and Anorexic,saturday 25th octo 014
| Posted on October 25, 2014 at 6:35 PM |
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i think very strongly that M.E. and Anorexic have a great great deal in common.
when my m.e. starts i eat .i am feeling more better than i did.not great deal better .just better that i was
if Anorexic stares when i eat .i am feeling more better that i did .not great deal betterr.just better that i was
when i eat all so i do not feel as dizzy as i would have ,WHEN//BEFORE i had eaten... .BOTH M.E. AND both
M.E ABD ANOREXIC CORSE ME VERY VERY BD HEADACHES..i am All WAYS ICJ, OFTERN a lot sich,
mark
medications. saturday 25th october 014
| Posted on October 25, 2014 at 5:50 PM |
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i have all ways hated//detested having Any medicines .i think this is very true for any disability .i find tablets/medicine very difficult to keep down
very very often choking ..being sick badly .swallowing great deal difficult,one thing that i found that helps mr a little, i have found a few things that
help me .like get a glass put at least 3 ice cubes in next some PURE ORANGE DRINK WITH JUICEY BITS NOTE ...OR...CRANBERRY OCEAN
SPRAY WITH ICE CUBES .,LEAVE IT FOR SAY threee mins .and drink away.the coldness of the juices helps a great deal/...nothing else at all
helps,.i have tryed it with say buiscuits //bread i am left choking. even when having pure orange or cranberry and the choking is like a am nearly
sick .HAS HAPPENED found it very difficult too try to STOP MYSELF BEING SICK ,because of the different health problems that i have i have to
take DIFFERENT medicines.some are lot worsor than others takes me a couple of goes. then i have a lay -down tablets/medicine will stay down
RARELY HAPPENS .mostly tablets/medicine COMES BACK UP.
mark
isabella rose tabitha kent friday 24th octo 014
| Posted on October 24, 2014 at 6:20 PM |
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too our darling ,wonderful,fantastic Daughter
isabella rose tabitha kent ..a very very very happy birthday .
three years old tomorrow
mum and dad xxx
tuesday 21st october 014. M.E.
| Posted on October 21, 2014 at 4:55 PM |
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last month .September i had a CLINIC APPOINTMENT ..M.E. //CHRONIC FATIGUE...a few days a go i got a letter back reply about this meeting
it went fine very well.LETTER I GOT BACK COME AS A BIG SHOCK //VERY SUPRISED .and it takes a lot too shock /suprise me .
on the letter it SAYS ,.. I, WAS ON THERE ..SEVERE LIST..ooh ,my word .M.E. lately i am being so AFRAID OF /nightmare .been find it very very
Upsetting,PEOPLE SEE a person in a wheel chair no arm or no leg.see problems they have ..PEOPLE DO NOT SEE THE EVERY DAY EFFECTS
M.E, ///ASPERGER SYNDROME//AUTISM,..i. sat and cryed when i got the letter.I WAS NEVER AWARE .until i got the letter saying i was on there
Severe list ,.it has SET ME BACK FAIR A MOUNT.M.E IS effecting me a lot lot more than say two years a go .I AM FINDING IT REALLY SCAREY
FRIEGHTENING ...CRYING LOT MORE OFTEN /shaking ,..last year i started ueing a walking stick.People really look//stair.YET I MAKE ..NO..
JUDGEMENTS ON THEM..PEOPLE DO TOO MY FAMILY//MYSELF most days.
mark
tuesday 21th october.014 BLOGS
| Posted on October 21, 2014 at 4:35 PM |
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blogs///people ,,,.THERE are a few that are very very good .BUT .THEN THERE ARE SOME SO BAD AND TERRIBLE .they do NOT reply
Last month I was talking to two people on DIFFERENT BLOGS.we e.mailed often chatting away .THEN I DECIDED I WILL GIVE THEM MY
Blog details FROM THAT SECOND ON I HAVE..NOT..HAD ONE REPLY FROM ONE OF THEM ,i took these for who they are ,what they do
Both these blogs talked both had lot different problems YET I GOT NOTHING BACK dropped,should be ashamed.makes me feel like i
should not say to any body i have a blog.PEOPLE DO ASK ME. but this happens too often .i am never taken for the person i am .JUST THE
DISABILITY ,being a disabed person is a LIFE SENTENCE ...People see too this,EVEN FAMILY LIKE IN-LAWS...who i DETEST.,
mark
