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having M.E. saturday 7th june 2014

Posted on June 7, 2014 at 4:55 PM

i have a high list of health problems ,migrains.asthma.hayfever.too name a few .BUT I ALL SO HAVE M.E along with asperger syndrome .THINK WHAT THIS IS LIKE .a time bomb.aspergers has a sleep problem .then m.e. is a sleep problem full stop .this must be very RARE to have

aspergers THEN HAVE .M.E.i was diagnosed with m.e. about 6 years ago.BUT HAD M.E. AT LEAST 10 YEARS ..it is very very PAINFUL at MOST

times.i cope by sitting and having a good cry AT MOST TIMES.m.e. ,autism and aspergers have so much in common .PEOPLE SEE a person in a

wheel chair ,BUT PEOPLE DO NOT SEE THE EVERY DAY EFFECTS OF M.E.,AUTISM AND ASPERGERS..my m.e is GETTING WORSOR so sadly

I can only do one thing like say for instance gardening or shopping .when i have finished come in the house with in 15 mins I AM FAST A SLEEP FOR UP TOO 2 TO 3 HOURS A DAY THIS IS .in the daytime.SEVEN DAYS A WEEK,in the past PEOPLE have called me ..lazy .waste of space

very very often as well sayind Depression.. i can not work.BUT i do take part in a lot research from universities .like this year on the internet i took

part in research about m.e. Deakin university.AUSTRALIA... note I HAVE THESE RESULTS ...i have to go to the M.E CLINIC .Peterbourgh a few

times a year . having m.e. does make ALLERGIES A LOT LOT WORSOR .HAYFEVER ,ASTHMA,MIGRAINES ..a lot worsor. difflculty speaking

very coommon OFTEN sounding like that person is drunk ..HAVING m.e. is very Different ever Effecting.

mark

my mum friday 6th june

Posted on June 6, 2014 at 5:20 PM

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this weekend very very upsetting,sooner or later i will be in floods of tears.it would have been my mums birthday sunday .she passed away

27 th dec .013 last year,my dad is getting by .he has been dateing.i can see it was for the best .in great deal pain most days .BUT IT DOES NOT

help even a little.when i went to my mums ceremony lot people there what hit me most of al was when the certains was drawn .i burst in to tears

when those certains closed it was my mum was no longer here.come cllose to collapeing .people who are aware of me like aunties.uncles

family .because i am disabled have been exspecting me to have lot lot meltdowns or nervous break down.BUT WAIT a cockin pickin min

here .this is me .i am very different,one thing that keeps me going is keeping in contact with people like say my gran she passed away about

7 years ago .two weeks before that i went too see her.MY MUM about 3 weeks before she passed away i went too see her.if it was not for these

i would be having melt downs.break downs.PEOPLE say about my mum SHE WAS DIFFERENT FROM OTHER PEOPLE .like saying she had

Aspergers I THINK SO and my dad does. i think my mum was A LITTLE AWARE OF THIS. she was UN..DIAGNOSED..when people see ME

and they have seen my mum PEOPLE SAY ..I...AM A CLONE OF MY MUM.my wife Tabitha has said this to me.considering my mum HAD

ASPERGERS very very good life .she had some falls just got lot lot worsor.my dad and i get on say a lot better than we used to .in contact most

days .i think one thing that has made a great deal diiference is my dad is MORE AWARE//CAN TALK ABOUT AUTISM//ASPERGERS .he has even

written about it ON HIS BLOG..http://www.magics-note book.com.

my mum all ways reminds me of this song from the 70,s neal read .mother of mine

for you mum.see you in my dreams

mark

research thursday 5th june

Posted on June 5, 2014 at 5:05 PM

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researchers, professors, universities.WARE THEY ARE GOING SO WRONG

1.when asking for people too take part ,they do NOT advertise in enough .ware to look.how to take part,how to find out information

2.universities should have one possible 2 open days NOTE FOR PEOPLE WHO TAKE PART IN RESEARCH..meet the staff have a

real chat ..researchers and professors

3.researchers and professors WHAT THEY ARE NOT SEEING

people who have autism//aspergers syndrome we understand we learn we become aware WHEN THINGS ARE DONE FACE TO FACE

A lot lot times as well.does not matter what it is face too face helps us more than any thing all so hands on hands ,yet researchers and

professors are really missing this at most times.

4.universities do newsletters that are NOT advertised ,peiople who take part in research should have these by e.mail or post ,a

way of keeping up too date what research is happening

5.researchers and professors should be more available like say by e.mail too ask questions .like the present research they are doing

6.universities .researchers AT ALL UNIVERSITIES lists//details should be kept FOR PEOPLE TOO TAKE PART IN FUTURE RESEARCH

mark

my family wednesday 4th june

Posted on June 4, 2014 at 5:20 PM

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married 15 years this year.HOW IS THAT FOR ANY DISABILITY..my wife.Tabitha .we have 2.boys age 11 and 14 years old.and our daughter age

2 years and 7 months old.I CUT HER CORD WHEN ISABELLA WAS BORN,..HOW RARE IS THIS VERY ANY DISABILITY.because we have

disability in our family in this town ware we live .WE ARE TREATED LIKE OUT CASTS crimminals are treated a lot better.we have no friends .PEOPLE TURN ON US FAR TOO OFTEN.both myself and tabitha was told we could not have children.because of both having health .so miricales

do happen our youngest son age 11 all so has aspergers .like i do .our oldest is not effected .our daughter mite have .because autism//aspergers is in our family ALL OUR CHILDREN ARE TESTED .a lot people who are aware of me like say ..family .relatives,uncles.aunties NEVER did think

that i would have a girlfriend .married children of my very own.NONE OF THEM DID..because I AM DISABLED ,how very wrong they was too make

that judgement .I PROVE PEOPLE WRONG .i am very very good at doing this.like if a person says to me.YOU CAN NOT DO THIS..IF ..I..THINK

THAT I CAN .then i will go and do this .then rub it in that persons face who said i could not do this .our oldest goes to a local college here .and

our 11 year old goes to a schhool in ELY .by mini bus.i am very very over pround of them .NO BODY HAS EVER SAID THIS TO ME BEFORE.

would like them to choose what they want to to .be happy,have a life.one of the biggest things from MY SIDE OF THE FAMILY IS ,.OUR DAUGHTER

IS THE VERY FIRST GIRL .VERY FIRST ,FROM KENT SIDE OF MY FAMILY..how is this for a disabled person ,who NOBODY DID THINK ..I..

would have family of my very own,.Tabitha my wife is NOT disabled in any way ..JUST HAS HORRIBLE//NASTY PARENTS ..well in-laws from

hell...that is apart from Tabithas brother David .so so much more better..

mark

invisible disabilities ,tuesday 3rd june

Posted on June 3, 2014 at 4:45 PM

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asperger syndrome//autism and M.E.are so a like very much in common, I HAVE ASPERGERS AND M.E.people see a person like myself

i have arms,legs,hands .so people do not see the every day effects of aspergers,autism and m.e.people see a person in a wheel chair .then

they see the every diffeculties .lets take myself for in stance i have M.E. i can do one thing a day only like take for instance getting the lawn mower

out and mowing our back garden,when i done this come in about two hours later .I AM OUT FAST ASLEEP in the day time this is.i can be a sleep

for 2 TOO 3 OURS A DAY THIS IS ..seven days a week. all so m.e. is very painful most days i just what too screem.screem people do not see

this.on top of having asperger syndrome .this all so has a sleep problem .PEOPLE are very very mouthy at making judgements against me .

very cruel.very unkind.YET they do NOT have these every day problems .they should ask them selfs HOW WOULD THEY COPE .HOW WOULD

THEY DEAL WITH THESE PROBLEMS 7 days a week.couple times EACH DAY and LOT HEALTH PROBLEMS.the every day effects of my

wife and children as well.Any disability is treated like crimminals are BY PEOPLE .SO CALLED NORMAL PEOPLE THIS IS .the word normal

alone SHOULD BE BANNED .what do people have too say for them selfs.