Mark Kent

as i am getting older i can NOT stand People ,they use me/myfamily when THEY WANT US.if we asked THEM ohh,my word would be a crime

People should be ashamed ad disgusted .my wife Tabitha .married 15 years .does NOT ...NOT,have one friend who would ask Tabitha around

theres cup tea/chat meet her in town have tea /chat .WHY .MARRIED TOO ME A DISABLED ADULT..Crimminals are TREATED BETTER than what

my wife//family are treated IN THIS TOWN WARE WE LIVE...even more so by Tabithas own Parents.i myself do NOT ..NOT have one friend .does 

not bother me.BUT ,MY WIFE .Tabitha people treat her having no friends THIS WOULD BOTHER ANY BODY.to OUR FACES people say we will do

this help with that.ALL MOUTH NO ACTION.,..if Tabitha does NOT say hello or morning FIRST to a person .THEY WILL NOT SPEAK .JUST PUT 

THERE NOSES UP IN THE AIR.happens TOO OFTEN.my wife Tabitha is MOST HELPFUL.UNDERSTANDING .TRUSTING TOO ANY BODY

How ever and it is very very big HOW EVER ,my Wife Tabitha and I NEVER HAVE THIS BACK FROM ANY BODY AT ALL .and i mean Any body.

wwhen People have got wghat they want from Tabitha and I .they DROP US like a Bomb.want nothing else too do with us .these days ..

Disability is like it is a CRIME//CRIMINAL OFFENCE ..we have children THEY SEE THIS FROM PEOPLE .very up setting .it is one thing too say 

Treat myself and Tabitha BUT INVOLVE ...LET CHILDREN see this ..very very sad Ashamed people should be

                                                       mark

things  i can tell

PEOPLE,laughing,crying,angry ,smiling ,hurt,upset,emotional ,looking at people.NOT STAIRING NOTE.

Helpful,understanding ,seeing 50/50 NOT EASY TOO DO.understanding another persons Joke.

BUT,wait a cockin pickin min here I..HAVE ASPERGER SYNDROME.researchers//professionals say that

People who have Asperger syndrome .THEY CAN NOT DO ANY OF THESE.and yet i was diagnosed with

Asperger syndrome .BUT VERY BIG BUT IS I CAN AM ABLE TO TELL ALL THESE .it does take a person like

myself with Asperger LONGER than most .BUT I OFTEN ABLE TO TELL/DO ALL THESE

                                          mark

this week i started wearing SANTA SOCKS AND SANTA T-SHIRT TOP,i mean how good is this .the very best .cards wrote out

and presents wrapped up.if you have sky tv. on true movies and movies 24 .CHRISTMAS FILMS HAVE STARTED .i adore christmas

it is unlike any other time.PEOPLE are a lot more Kind .helpful .MOSTLY TO OUR FAMILY PEOPLE ARE TOTALLY UNKIND ,UN-HELPFUL

i so love having Mulled Wine and SacSumas .even more so BUCKS FIZZ .my MUM got me drinking this .the fizz is mouth watering ,i do think

that christmas should be TWO TIMES A YEAR..i got a very fantastic christmas Jumper too ,christmas music.christmas films WHAT FUN .,

it is so very very UN-FAIR its only once a year ,

                                       mark

LAST PART OF THE INTERVIEW

9.sex,puberty.autism.asperger.having a son with Autism what are your views on this.what will you do/cope ,find out things sex education wise

REPLY,,,.,.Alfie is only 7,so we have all of this too come.i admit i am worried about how puberty will effect Alfie .like all parents i want my child to go on too have a loving.fulfilling relationship,but i dont know.so young we cant know.how much Alfie will be able to understand sex.will he understand the concept consent.for example our biggest con cern right now is safe guarding.Alfie is vulnerble .he trusts every one.if a older child or a adult were to harm him he might not understand.what was happening or that it was wrong .and we would have no words too tell him //us,.we are very 

cautious about leaving Alfie any where or with any one we do not trust absolutery.

NOTE FROM ME,very rare subject for Autism/aspergers very very well said Alison 

1o.question for you too ASK ME//,,,   IF I HAD THE CHOICE AND COULD TAKE AWAY MY ASPERGER SYNDROME .WOULD I DO SO.IF .NOT WHY NOT ..

MY REPLY,FOR MY FAMILY , i wish i had not had aspergers .wish i could work .earn money for my family .have our very own house//home

BUT THEN THERE IS ALL WAYS A LOT LOT WORSOR PROBLEM I COULD HAVE BEEN DIAGNOSED WITH ,

FOR MYSELF .People NEVER show me Empaphy .thank you ,please,how are you.sorry,BUT I SHOW PLENTY OF THIS TO OTHERS.

i,thank god that i am NOT normal. it is NORMAL people who use me .it is all around them.what they say,treated like SHIT.crimmals are

treated a lot better.when people have gotten what they want from me .THATS IT THEY DROP ME NOTHING ELSE TOO DO WITH ME

as i am getting older I CAN NOT STAND PEOPLE .HATE//DETEST THEM .PEOPLE HAVE DONE THIS..very very very often i go out of my way 

too help ...IF I TOOK AWAY MY ASPERGERS ,,,...i would not be me//myself .two books I WROTE would never been writteni would NOT see the

world as very different that i do FROM NORMAL PEOPLE.

11.do you think that make -up should be seen as a disability ..by this i mean..creams .eye shadow .moisturizers

REPLY,..i think this is a very interesting question.and not something i had considerd before,my view is that some people have physical or

cognitive impairments and some people are just different .but they are not them selfs.disabilities,disability is creatably socity other than intrinsic to the person.this is because society is set up in such a way that it is harder for some people to access services orplaces or work

or generally take part like railway stations having no step-free accessthat disabled wheelchair users ,so you could argue that having a society

that lobies female beauty and yet rules could be disablling for some women.making it impossible for them too go out in society with out make

up .mke up,moisturisersbut i think it is a stretch .i use moisturisors .and wear make -up.but i do not think i do so because socity attitude .disabilities ,no.i would be interested to hear the views of your other readers views on this.though ....Alison

                               finished..ooh.yes                                mark.x

PART THREE

7.PLEASE NOTE THIS NEXT BIT IS ..NO..JOKE,NO LAUGHING MATTER..REALLY DOES HAPPEN

PLAYING WITH POO//.SHIT

Alfie has done this,.very common in Autism//Aspergers,what happened.what did you do.how did you feel.how did you cope,how old was Alfie when this happened,.

REPLY,.Alfie used too play with POO smearing it on the walls and throwing it down the stairs .it really did not bother us that much,all young babies make messies.Alfies messes just went on a bit longer.it probably helps that we are not especially house pround.we have wipe-cleans  paint in Alfies room.so it washs off, now Alfie is toilet trained he is  very pround  of how well he uses the loo and he usally does not touch his poo .he does 

retain a great interest in play dough and making mud pies in our garden though

NOTES FOM ME ,. I WOULD LIKE TO THANK ALISON ..VERY BRAVE LADY ,VERY RARE SUBJECT .YET IT HAPPENS VERY OFTEN WITH AUTISM//ASPERGERS //...,SHOULD BE TALKED ABOUT LOT MORE ,.YET IT IS PUSHED UNDER A CARPET .EVEN MORE SO IT IS SO EFFECTING ..,, very very well done ALISON who DARES TOO TALK ABOUT IT ,.very impressed,

8, a question FOR ME TOO RELY TO /ASWER.... what do i wish every one else uderstand about Autism

MY REPLY..People see a person in a wheel chair .no arm or no leg.PEOPLE SEE THE EVERY DAY EFFECTS ..DIFILCULTIES THAT Person has

PEOPLE DO...NOT..SEE THE EVERY DAY EFFECTS the Difilculties a person has who has Autism//Aspergers   AND M.E. CHRONIC FITIGUE

I all so have this,the EVERY DAY meltdowns we have ,EVEN ADULTS...NOBODY and i mean NOBODY has ANY RESPECT FOR ..ANY..

DISABILITY AT ALL .

                                                  mark

more from Alison TOMORROW

PART TWO

3.anything you have not done with Alfie .but would like too .,because of Autism

REPLY,.in general .we try to focus on the things we are able to do.not the things that we can not do because of Autism,i   tell every one that we can get in to the science museum an hour early on Autism-friendly days and never have too que at alton towers .we have met amazing people that we would not have know with out Alfies Autism .but of course there are things that we avoid doing,Alfie has very little sence of danger so we avoid some enviromments .he finds quewing hard to deal with ,if we ever lost him ,he would not be able to tell people his name or where he lives .so we do not go too big events ware he mite get lost in the crowd.

4,you,take Alfie to different countries like by plane .talk about this .last time you took Alfie to a different country Alfie had a big big meltdown.talk about this,ALL SO Alfie was able to be aware notice that he was NOT in the same country he went to on your last holidaty,very important point here

just made.

REPLY...Every year we go to Canada as a family to ski,.we have been doing this since Alfie was born and before his Autism became apparent

Alfie has exellent memory for detail  and journeys .he loves too go too Canada and frequently requests to go there .bring us photo grahsor by

unpacking the ski gear.when we go we all ways book the same room ..seats on the plane and hotel room,Canada is very well up for Autism and other disabilities .there is a specialist teacher for Autistics skiers .and Alfie loves her very much.so it is NOT  a problem .HOWEVER ,last year we decided to have a second holiday over summer in Germany .foolishly we did NOT do enough to prepare Alfie for his exsperience .so we took Alfie on a plane .Alfie must have assumed we were going too Canada .he was very happy on the flight .BUT when we landed and he realised it was NOT montral .,he had a COMPLETE MELTDOWN.sreaming.punching.scratching.all the wat through immigration and baggage control.FORTUNATLEY the immigration officials understand what autism is ,as soon as i saie MEIN KIND HAT,.Austismus .they understood 

his behaviour

5.meltdowns.

REPLY..can not tell us what it is that is upsetting Alfie .so we do not know .we just hold him and stroke his hair ,hoping that it will pass 

6.what would you like to see change in the Autism/Aspergers world

REPLY,soiety needs to become more accepting of difference .NOT just Autism and Aspergers..ALL DIFFERENCES.

                                     mark

PART THREE TOMORROW

THIS INTERVIEW WILL BE DONE IN TWO PARTS ,POSSIBLE THREE PARTS

PART ONE..    tell us little about you and your son Alfie .his age

1.my name is Alison Hardy.i work in marketing ,i am married to Alex .we have two children .lizzy who is 17 who is neurotypical and Alfie.age 7 .who has Autism.Alfie is almost completely non-verbal.he pursues his own agenda for much of the time.which means that he takes far longer than other children learn how too do things .../he takes less notice of what other people do so his oppertunities for social learning are fewer../he all so has some sensory challenges.he seems acutely sensitive to noises .particularly noise ,which can be very distressing for him.conversely he does not seem too feel hot or cold at all .and is in danger of burning himself on hot surfaces or  freezing to death .as for example when he took all his clothes off in th snow.

2.age when Alfie was diagnosed .has it helped you.with being diagnosed .how autism effects Alfie /family how you parent feel

REPLY ,..Alfie was diagnosed when he was two and a half years old .we probablly know for longer or at least suspected  tha Alfie was different .but it took us a long time to talk to one anther then to contact the health professionals,the process of diagnosis was quite lenghy .not because our local nhs was slow,but because it was a thoughful and considered process.four different professions .a health visitor ,a community paediatrician .a  speech and lanuage therapist and an occupational therapist..saw Alfie  on three settings home,the clinic and his nursery.we received lenghy and thoughful written diagnosis .exsplaining what observations had been made and why the professionals considered this was consistent with asd .followed up with a face -to-face  meeting through out the process .i kept hoping that some one would tell me i was wrong that i was just a pushy middle-class mother kicking up a fuss be cause her son was not hitting developmental mile stones as fast as other children ,so when we got the diagnosis .i felt a mix of vindication and sorrow .i cried at the face to face meeting.i kept thinking what if he never learns to talk.what if i never hear my son say i love you mummy.i confided this in Alex and he said rather crossley ...,this is not about you.it is about Alfie .it sounds harsh .but  of course he was right and from that point i was able too pull myself together and focus on getting Alfie the best care for Alfie .

more from Alison will follow within a few days .

                                 mark

i will be interviewing different people ,asking them questions .my very first victim  is my dad 

1,when did you and mum first notice that ...i...was different from other children

REPLY,.in Germany they gave you the label //educatinally subnormal//it was all so then that we relised you had been the subject of bullying

2,in our families ware do you think autism//aspergerds come from.like say from mums side //your family side

REPLY,initially i thought it was via your mums side ,.thinking of susan, but more recently i gave myself the cambridge test for autism and scored

about 86% so i am no longer sure

3.what would you like to see change in the autism//aspergers world

REPLY.Diagnosis in the womb

4.in the past say five years you have taken a big in terest in autism//aspergers syndrome .can one thing be you think you could have this.

REPLY the cambridge test and a problem in visualising  abstract numbers. make me think so.

5.how do you feel about having a son with asperger syndrome

REPLY.it bothered me at first.but later i learned that nature compensates .you turned out ok.and with your iq you suprised every one

6,research.what would you like to see happen ,what to do.ware to go with research 

REPLY.adults are pretty well  set in their ways and their thinking.they all so get ideas and follow them ignoring anything else .lateral 

thinking is required and it is so.something that adults have been been brain washed out of by formal learningi would challenge a thousand 

kids to come up with a solution for earlier diagnosis.the diagnosis of pancreatic cancer used to result in only a very small percent of patients s

surviving .a 15 year old kid come up with a instant cheap test.a lot adults will owe their lives to the kid and not the so called exsperts .kids could do a similar thing with the suppression of trige minal neuralgia pain .supepieticimagiea ,thousands kids with lateral thinking and then remember serendipity,the results could be amazing but for reasons other than the obvious ,

7.you do a blog .you have written pages about autism//asperger syndrome .write your blog details down

REPLY,magics-notebook.com

i did not too much about it.i was initally interested in early diagnosis and patient parent inter face .i wasted some time in building part of a robotic eyes with the idea od a simple eyeball tracker .and then found a lap top with that found built in.,one thing that botherd me was getting an overall picture of all related subjects .so i started plotting them all on a high /low graph.about four feet long .some thing a kid could understand and cope with .i could not spend to much time on it because i was caring for your mother at the time .now i have moved on to the problem of mobility for the aged .

8.what suprises you most with asperger syndrome.

REPLY,how little the exsperts really understand about the whole spectrum

9.question for you to ask me...,,  where can i find a thousand and eight year olds

MY REPLY,... try going too conferences ,..research

10.question for you to ask me ...how can we exspect much to happen in 20 years time .if nothing different is done today

MY REPLY..,,i was diagnosed about 1991 ,from their to today ,..HOW HIGH OUR IQ IS lot lot more than MOST PEOPLE

we think //wired very differently .our obsessions we notice/see things most people do not 

11.with me being a disabled person .did you and mum think /view that ...i..would ...not..have a girlfriend //married..children of my very own 

YOU HAVE GRAN CHILDREN

REPLY,,...,to be honest i do not think that we wre really thinking that far a head.i gues that your decision to get married suprised us.your 

mother and i wre both happy with the result..BUT NOT HAPPY WITH THE INLAWS HAVE BEHAVED..just before i die i may just pay them a visit.

12,write a little about your self .

REPLY,. a soul that has seen much on this planet and find i am still happy to be a lost caurse 

        these views are from MY DAD

                                                                   mark

Tabitha,myself .jason .lewis and isabella rose we was invited and we ALL WENT to Davids wedding too KIM,our FIRST AS A FAMILY .

David did NOT invite his own mum and dad .HOW VERY FUNNY IS THAT.all the TROUBLE ..HIS..PARENTS CORSE ,fantastic day it 

was WITH OUT THE TWO HITLERS ABOUT.if i had my way i would done the same at our wedding .BUT DAVID would not been able too

come.David is NOT a Rutterford any longer .I BET THIS REALLY SHOWED HIS PARENTS UP..in a way David was DREADING IT .i think

close too tears when the vicar said ..any body want to say why they should not marry .close to tears i think.HIS PARENTS SHOULD well

say EX ..EX,PARENTS should be ashamed and disgusted with THEM SELFS .there SON got married THEY HIS PARENT WAS..NOT ..

INVITED .ooh,my .that deserves a MEDAL very very well done. not only that but David has a second sister .younger than Tabitha ..

along with his parents SHE WAS ALL SO BANNED FRON DAVIDS WEDDING .,I HAD such a really good laugh about it .so funny so very

Amusing.Davids EX PARENTS well deserve it and a lot lot worsor.DISRESPECTFUL BAS......,the weather was good.we got a taxi there

NOTE WE PAID FOR..i am a BIG FAN OF DAVIDS .i told David some time ago keep away, stay away from your parents .YOU WILL HAVE A

LIFE ,..and David has TRULY FOLLOWED THIS.

                                                           mark

Professionals  ,doctors ,say a person with m.e CAN NOT DIE FROM IT..i disagree very very much.lately m.e. is making ME very afraid very 

scarey.whole body is very effected to the effected you can not stand let alone sit.i feel very very strongly that any body with m.e. can and do

die from m.e,i feel so very alone with having m.e. i do ONE THING like say shopping .get home I AM FAST A SLEEP FOR 2 --TO THREE 

HOURS  A DAY THIS IS..it is not over when i w\ke up .very very dizzy,.i am getting more and more frieghtened of m.e ,think if there is a god

how could god be SO VERY ..UN..KIND.,MOST TIMES m.e. i fear for my own safety..i have found it HELPS A GREAT DEAL TOO have a 

really good cry,.very very often i think there are people who are a lot worsor than what i am .they need a lot lot more help than i do .BUT., VERY

LATELY NOTHING HAS HELPED ME..my ableness... willingness ..is getting ,less and less.very very very FEARFUL of ending up in a wheel

chair..NEVER ,NEVER making it out of the wheel chair EVER AGAIN.every day i push my self too near collapse.,belive me it has come close

PEOPLE...DO,..NOT SEE THE EVERY DAY EFFECTS OF M.E.i CAN NOT work feel terrible just on this subject alone for my own family .

i would love too work//earn like most people ..even if it was fifty or thirty pounds a week.,

                                    mark